Monday, March 28, 2011

A Family Matter

(Alie is the blonde on the Far Left and Chloe is next to her getting hit with leaves!)

I posted this to Facebook and wanted to share it here as well...It is so close to my heart.

Below is an email I received from my brother last night. I have been given his permission to share Alie's story with all of you and hope you will do the same. He is a very private person and he would only share this story if he thought it was necessary. He has also contacted the media and plans to spread the word as far as they can. Spencer and I plan to help spread the word. Just to make my stance clear, I have a strong back ground in Public Health. I worked as an epidemiologist in vaccine preventable diseases for the Utah and Nevada State Health Departments. I believe vaccines are effective and an important tool for saving lives. I have seen the adverse effects on those who don't receive the scheduled vaccines. But the HPV vaccine or Gardasil is very different. It is a new vaccine heavily promoted to prevent cervical cancer. It is very expensive and highly profitable to the companies that distribute it. I believe we are the test rats. There are thousands of stories just like Ali's. I understand clearly the statistics and how statistical significance works. But to personally experience this makes any side affects this severe unacceptable in my mind. Patients should be educated on the real risks. My brother is one of the most intelligent people I know and is so well educated on this matter. He is an orthodontist and attended the Mayo Clinic himself. He believes vaccines are needed and that they did NOT cause his other daughter Chloe's autism. I share this so that my friends and family can be aware of the risks and make an educated decision concerning the HPV vaccine. My children will not be receiving this vaccine. They are giving it to teenage boys now as well. Please know I have no desire to stir up fear about vaccines in general. I have always been a proponent of them. But for me this is different and I will take Stella in to get her yearly pap smear instead. This is very personal and heartbreaking for our family. Kristy S.

THE EMAIL FROM MY BROTHER ALAN~

Dear Family and Friends:

We just wanted to give everyone a brief update on Alie (14 yrs old) and tell you of recent developments and what we fear may be causing her sad and aggravating degeneration.

First, a brief history of where we have been.

Alie has always been happy, motivated, organized and energetic. She has consistently been a top student and the most social, interactive child we have raised. Her piano, singing and acting were really starting to be the main focus of her life and brought her much joy and praise from everyone. One of her great moments was (as a 7th grader and just as she was starting to feel ill) arranging an audition for the 9th grade jazz band. Playing and singing "Brown Eyes" (Lady Gaga) instantly landed her the singer/piano position. We were all thrilled and excited for this and future possibilities.

Unfortunately, Alie has been on a slow, downward path beginning about the time she sparkled in "A Christmas Carol" at the end of 2009. She began feeling extremely tired, dizzy and nauseous, which gradually progressed to outright weakness, uncontrollable bowels, hair loss, sore joints, itching, swelling, and many other strange symptoms. She struggled to finish 7th grade in the Spring of 2010 but pushed onward, even successfully completing advanced-placement tests to skip 8th grade. However, during that summer she continued to weaken and suffered from constant exhaustion and a variety of puzzling ailments. By the time 9th grade started in the Fall of 2010, she made every effort to attend part-time classes and practice with the jazz band, but it soon became apparent that she would have to drop out of school and give up music and the band. She has now missed her entire 9th grade year which has been devastating to all of us.

She has seen every type of specialist: GI, ENT, OB, Endocrine, Immunology, Rheumatology, Allergy, Cardiology, etc, and has had every blood test, MRI, ultrasound, CT-scan, x-ray, endoscopy, colonoscopy, etc, that they can come up with. We have spent thousands of dollars and hours with no diagnosis or course of treatment. Medications just make her more sick. We have tried every type of diet. Now Michele makes every meal from scratch, carefully watching every ingredient, but Alie still fades.

A few months ago Alie began having anxiety attacks where we observed whimpering/crying, hand flailing, hyperventilation, complete pupillary dilation (even in daylight) and short periods of complete unresponsiveness. These frightening actions reminded us of Chloe's (sister, 16 yrs old) violent/debilitating seizures and neurological degeneration that started a few years ago. Chloe completely lost the ability to walk, chew, go to the bathroom, use her hands, etc, when previously she used her fine-motor skills to create intricate drawings and detailed Play-doh sculptures of her favorite Disney characters. She was very active and loved to run around, climb and swim. She was also an expert at using the computer even though she always suffered from mental retardation, lack of speech and severe autism. To this day, Chloe has only partially recovered and still attends the Dan Peterson School for the severely handicapped instead of the normal special-education program where she was before. We still have to feed her bite by bite and do all personal-care functions for her.

Even more recently, Alie has displayed progressive muscle degeneration where she cannot hold her head up without a brace, cannot walk without assistance, has a very difficult time breathing, and is basically bed-ridden. We plan to get her a wheelchair or a big jogging stroller to help her get around. There are times when we think she may need a ventilator. This progressive muscle weakness is particularly troubling and debilitating. It led us to once again review conditions such as Multiple Sclerosis, Myasthenia Gravis, Dermatomyositis, Guillain Barre, and many, many others. That's all we do is study and research and worry. Every physician just sends us out the door without answers. It's like a compounding nightmare after going through similar with Chloe a few years ago.

Since Alie's recent symptoms most closely mimic ALS, researching that led me to a shocking and frightening possibility: Alie and Chloe were possibly injured by an aggressive and under-tested vaccine, Gardasil, only available since 2006 to prevent cervical cancer in young women. It is commonly recommended by physicians as a routine school vaccine for girls. Our daughters had this vaccine at the pediatrician's office when it was brand new in 2007/2008, and Alie in the summer of 2009 right before her deterioration began.

Now, before anyone accuses me of being some anti-vaccine nut, let me remind you of how much we have been through with Chloe. When she was first known to be autistic, I read everything ever written on the condition. By nature and education, as well as the trial-by-fire experiences we have traversed, I am a thorough and well-read student. I understand the scientific method and how to evaluate studies, statistics, case reports and journal articles. The prevailing public sentiment has been that vaccines (or their preservatives) caused autism. After studying all the research, I concluded (and still maintain) that vaccines are unlikely to be a cause of autism, which undoubtedly has a strong genetic component. Therefore, our kids have always received all the basic school immunizations. However, Gardasil is very new, already has thousands of injury reports and many deaths (from the CDC website: 18,354 adverse reactions and 61 deaths), the symptoms of which describe Alie almost word for word. All you have to do is Google it and see for yourself what is out there and what BIG PHARMA is trying to silence, much as they recently did with VIOXX for several years before it was finally recalled for causing stroke/heart attack. Gardasil is worth $billions/year to Merck and their advertising campaign to sell this vaccine has been very aggressive.

This is from one report:

"Since
’s introduction in 2006, the Vaccine Adverse Event Reporting System (VAERS) has received more than 15,000 reports of adverse side effects related to . These reports include serious adverse side effects including Guilliane Barre, lupus, seizures, paralysis, blood clots, brain inflammation and many others. There also have been 44 reported deaths as a result of uses.

Then, on October 25, 2009, Dr. Diane Harper, lead researcher in the development of two human papilloma virus (HPV) vaccines and director of the Gynecologic Cancer Prevention Research Group at the University of Missouri, told an audience of medical professionals that
is largely unnecessary, and that it has never been fully tested on females under the age of 15. This, despite strong marketing efforts to make the drug mandatory for girls, and product literature and advertising that state the product can be used by girls as young as age 9."


Please go the this blog and read about some of the hundreds of young women that have suffered just like Alie. This is the first time we have found anything that so closely fits her bizarre condition. The whole scenario makes us sick and we cannot sleep, much less do anything else. We will get to the bottom of this and find some way to help her. Please hope and pray for her recovery.

http://truthaboutgardasil.org/injuries/


Here is another recent article. There are many reports and articles about the potential damage from Gardasil, just search for them.

http://washingtonexaminer.com/blogs/beltway-confidential/update-foia-uncovers-16-new-gardasil-related-deaths


Please tell everyone you know about this so they can decide whether or not to expose their daughters to these risks from Gardasil. Our question, why should anyone receive this if the injury/death rate from the vaccine is similar to that of cervical cancer itself, a cancer that can be detected with routine pap smears? Had we known anything about this a few years ago, we would have never subjected our daughters to those risks.

Alan/Michele Carter

3 comments:

Melanie said...

Thank you for sharing this Kristy. Although I am not against vaccines, I have had a bad feeling about this vaccine for some reason.

Kate said...

I linked to you because of Lisa Benson and am now telling everyone I know about Gardasil... thank you for the information, and I'm praying for your brothers daughters (bless their hearts!)

Rebekah said...

I used to work for Alan about 10 years ago. I remember sweet Alie and Chloe. Both healthy, darling and perfect. I'm so sad to hear about this! I'm glad Alan is sharing his experience as it may help others to avoid the same terrible situation. I know for sure that my daughter will not get the vaccine. My heart goes out to Alan and his family.